Researchers from Palo Alto University and Stanford University
School of Medicine are conducting a study to learn about the benefits of
cancer support resources on the mental health and quality of life of children with cancer. Here’s what they sent KB4C. Note the contacts at the bottom of the post if you’re interested in participating.
The goal is to learn about the availability of resources and which resources children and their parents find most useful. The investigators are Wendy Packman, JD, PhD, Stacy Weber, MS, CRC, and Nusha Nouhi, BA. In this work, the researchers are collaborating with Michael Amylon, MD, from Stanford University School of Medicine. They are requesting participation from children diagnosed with cancer (ages 6-17) and their parents. The study aim is to develop recommendations to improve the quality of care provided to children with cancer and their families.
If you choose to participate, you and your child will be asked to complete questionnaires two times in 2010, once in the spring and once in the fall. Your child will be asked to complete questionnaires looking at his/her quality of life, self-concept, stress response, and emotional growth following his/her cancer experience. You will be asked to complete questionnaires about the impact of your child’s cancer on your family functioning, your own stress response to your child’s cancer, and your perception of your child’s quality of life. You have the option of completing the questionnaires online or we will mail copies to you. You and your child’s individual responses will be kept completely confidential.
Participation in this study will take a total of 1 1/2 hours for your child (45 minutes in the spring and 45 minutes in the fall) and 1 ½ hours for you (45 minutes in the spring and 45 minutes in the fall).
If you are interested in participating in this study please send an email to:
CancerSupportResearch@gmail.com or call 650-319-8894